Most people do not believe in fibromyalgia, they say everything is in the head. You have also faced such people in your life. Sometimes people ask you questions about your illness. The time has come to explain what fibromyalgia is because they have not lived what we are experiencing. Fibromyalgia is the hardest thing to deal with people do not understand. We asked our online Facebook community “Living with Fibromyalgia and Chronic Disease” how do you describe your feelings about fibromyalgia?
Fibromyalgia is an excellent incentive to live each day. If you wake up and can move, enjoy it. If you wake up and can not move, do not do it. Rest, read a book, watch a movie. It may not be what you want, but that’s what you have to do that day. Tomorrow is a new day and may well be different from yesterday. Be thankful that you have tomorrow because many people do not do it. I know it’s hard to feel that when you’re constantly dying, but there’s always something good to do every day.
No words to describe how terrible it is, it’s a hell, it’s like I’m out of life. But we have compiled some of the descriptions of pain described by our members below.
Here is what the community shares with us:
1. Imagine the worst flu you’ve ever had, multiply it by 10, then imagine being beaten or hit by a car, then think of the most exhausted you’ve ever been and multiply by 10. And good day to live with fibromyalgia feels. A bad day really challenges any understanding and understanding.
2. You run a 10K, with the flu and you cut all your grass by hand with scissors. This kind of wound. But everyone expects you to do it again the next day because you do not look sick.
3. Pain that moves around your body. He chooses a place and you hold your breath until he passes, then he just moves to another place. You fight to pretend not to hurt and you try not to scream or cry. You feel tired, but you can not sleep that version of sleep where you hear everything and you become completely charged with adrenaline. The heart beating and exhausted, you go down if you can. The tips of your fingers and toes sometimes become numb and you can not stand the cold. Your muscles knot and twist and you try to relax and not stretch, because a terrible headache could be next. You have fits of depression and I save myself personally in music or fantasy to cope with many situations. You can not speak properly all the time and you have trouble thinking clearly and concentrating. Yeah, that’s enough for the moment. Just an idea.
4. Beth W- it makes me feel like a lead man. It’s perfect, the tin man who has to be oiled in EVERY single joint. And someone holding a torch to ALL my sore muscles. With my head in a vise. Yes, that sums it up, what a miserable existence
5. Marjie C- It makes me feel prisoner of my own body! Never knowing what torture is coming
6. Jessica C- I feel like I was hit with a bat, my muscles are torn and torn, I feel like I have a 2 × 4 stay on my shoulders all day while I’m seized and sweating death …
7. Vickie M- I feel like I have a little elf in my body running with an ice pick and stabbing my joints and muscles at random 24/7. 8. Kimmie G- As a triple trailer crushed me; as I need my hips replaced; cut my waist because the bottom half is just not used friendly; your worst hangover guild X with the worst flu virus 2 hit humanity and a memory the size of a knat …… otherwise, I feel good!
9. Tracey W – I have a ghost who likes to squeeze parts of my body, as if someone were pushing his fingers into your skin and grabbing your muscles in a tight vise.
10. A vise squeezes on your head, a 20-pound backpack is heavy on your shoulders, your hips, your knees, your ankles, your feet and your hands. At the point of pain, there is a tingling sensation as when your foot fell asleep … except instead of just the foot, it’s all over your body. Your eyes are painful, your skin is sensitive to touch, your nose is sensitive to odors. The lack of restful sleep keeps you groggy and tired.
11. Kerryn E – It’s like having a hangover and being drunk but also sick like a flu after doing an intense whole body workout and 10 rounds with Mike Tyson but lost and living on another planet because I’m a stranger compared to others that they can not understand my life as
12 It’s a living hell! You have pain everyday. The pain moves continuously. Just when you think that no other place can hurt, your skin hurts. It’s like a Mack truck crushed you over and over again. It takes me hours to shower, make up and dry my hair. When I’m done, I have to sit down and rest. It is difficult to sleep at night because you can not find a position that does not hurt.
13. Increasing pain from head to toe as if someone were pouring a hot liquid down the throat and spreading inside the body. the hard part is trying to stay positive anyway. you never know if it will manifest as IBS one day, migraines the next day and Epstein Barr. then depression over it. I have more symptoms that appear every day. I have those skin scars that look terrible and from which the itching has become so severe that I tore my skin and bleed it. he left terrible marks that look like me I was burned. Ironically, the combustion comes from within.
14. Burning pain unbearable throughout my body, which gives me the impression of being burned. Pain in the feet and heels as if I were walking on broken glass. Take the most tired you’ve ever felt and multiply it by 100. The flu is 10 times worse. Pain burning to the touch. Pain that no medicine helps. The pain and fatigue are so severe that I can not work. I almost lost everything I worked so hard, waiting two years for my disability to be approved. Living with severe debilitating pain and always looking normal, which makes me feel that I can not work because people treat me like I’m lazy and just do not want to work.
15. Sandra L – A thief who stole my life. Two days are not the same. You never know what he will throw you. Every day is something new, a new pain, a new thrust. To be bedridden. You fight your body just to spend the day. Nobody should have to live, live, or live like that. Pain is an unbearable pain that most people can not bear, we have no choice but to accept it. The medical field really let us down.
16. Tracy W – As if someone had found the drawstrings of all my muscles and tendons, then pulled them all up the thigh. I feel a lot like that and it’s not going to be a wedding.
17. Imagine a nylon cord. Turn it against the grain. See these small openings? Pour the crushed glass and the sand inside. Now, close the cord. You feel the grain that does not allow the nylon to return to the point of origin? Now imagine that the nylon cord represents each muscle fiber, tendon and ligament between your fingers, your hands, your wrists, your ankles, your feet and your toes. Put on his shoes. Gloves. Is it uncomfortable?
Now, try to walk. Conduct. Permanent. Grocery shopping. It sounds horrible does not it? Now, imagine that you are NOT getting relief. Some days, add each part of your back to the list. Add nausea. Add migraines. You just want to sleep, but sleep does not come.
Your head is misted. You lose words usually in the middle of the sentence. You can not think properly. People think you’re stupid, even if you’re not. Add mental health issues to the mix. Still feeling overwhelmed? It’s a good day. Tomorrow can be worse. You can not plan this. You do not receive any kind of warning.
18. When I have a heart attack, I get the impression that acid is flowing through me and burning me from the inside. But on “normal” days, I try not to recognize the pain; I’m just doing what I have to do, but it’s still there in the back, which keeps me from being all that I know I could be.
Nervous pain is ugly and although I feel constant pain in the neck, hips, shoulders, hands and feet, from time to time I get stung belly or chest that comes out of nowhere and takes my blow a way. The last time I felt good was a whole day when the doctor made me take steroids. I did not hurt and it was glorious, then it started to burn my stomach and cause cramps. I had to stop the drugs. Memory problems and fatigue bothered me even more. Maybe because my mother has Alzheimer’s and I’m terrified that she’s coming for me.
19. Janice R – I feel like I’m attached to two horses and go in different directions. My arms to a horse my legs to another. My orbits feel badly articulated. It becomes terrible in times of crisis. Other times, not as serious, but always painful.
20. June J – I get the impression that someone dances in my head and chooses what and when I become deaf, dumb and dizzy.