Fibromyalgia, a disease that can take up to 10 years to be diagnosed

“Fibromyalgia is a disease of non-joint rheumatism, this means that its origin is not inflammatory, and is characterized by a chronic and generalized musculoskeletal pain whose cause is the alteration in the perception and interpretation of pain at the level of the system central nervous system, “the psychiatrist Evangelina Melgar, coordinator of the Clinic of Fribromyalgia of Ineco, explained to Télam.

And he continued: “In other words, the pain that the person feels has an organic cause, it is not subjective or psychological as many people, and even health professionals, still believe in. That is why it is so important to raise awareness about the disease, so that we can arrive before with the diagnosis “.

The main symptom of people suffering from fibromyalgia is pain in certain specific points of the body such as the lower back, neck, shoulders, knees, thighs and arms, and usually gets worse with cold, infections, stress and lack of sleep.

Another of the symptoms, which are typically associated with pain, is chronic fatigue or exhaustion that oscillates during the day with moderate to severe intensity and it is also common for these patients to have sleep disorders: difficulties to reconcile or frequent interruptions during sleep. night.

“The diagnosis of the disease is given from the clinic, ie, what the patient tells and the doctor’s observation, it can be given by any doctor but it is important that the patient makes a consultation with a rheumatologist to rule out another type of diseases such as lupus, arthritis or osteoarthritis, “he said.

Although there is a genetic predisposition, the disease can ‘wake up’ after a peak of stress or a traumatic situation, which, as explained Melgar, also happens with other diseases such as hypertension, diabetes and cholesterol, etc.

This was the experience of Lily Días, a 51-year-old woman who, after the death of her mother, began to have intense pains in her body: “One day I woke up with a terrible pain in my shoulders, I went to a guard and they gave me ibuprofen and they sent me home. “

“As the pain continued I went back to the doctor and after an extensive interrogation and a blood test to rule out other diseases he told me that he had fibromyalgia,” recalled Días.

He added: “I was very lucky, because the diagnosis can take 2, 5 or even 10 years.”

The woman remembers that she received the diagnosis as “a water shelf”: “I knew something about the disease but the first thing that everyone told me was that it was something psychological, that it could not be that I had pain all the time. I did not count in the work that I had this disease, until a return, after a crisis, I took a certificate. Soon I was fired, “he recalled.

Days formed one of several peer groups that work in social networks, but yours has the focus on promoting a law that considers the rights of people living with fibromyalgia: “The first project was presented in 2011, every year he loses parliamentary status because it is not treated, “he described.

This year, the project carries the number 0216-D-2017 and was presented by the deputy of the Socialist Party Gabriela Troiano, but was not yet addressed by the corresponding commissions; the objective of the standard is to include fibromyalgia in the Mandatory Medical Plan (PMO) to guarantee 100% treatment, generate a registry of people living with the disease, prevent it from being a cause for not hiring a person, among other actions in order to improve the quality of life of those who suffer from this disease.

Although there are no national statistics, it is estimated that the prevalence of this disease ranges from 0.7% to 2% of the population and mostly affects women.

“It is not an incapacitating disease in itself, but it can become so if the person does not have adequate treatment, and this is not limited to medication, in fact there are patients who have managed to control their symptoms without it,” said Melgar.


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