For those who do not understand about Fibromyalgia

What do you need to know about fibromyalgia?

Fibromyalgia is not a new type of disease. Fibromyalgia was described in 1815 by William Balfour, a surgeon at the University of Edinburgh. Over time, it has been described as chronic rheumatism, myalgia, or fibrosis. Unlike diseases, syndromes like fibromyalgia have no known cause, but are a group of signs and symptoms that are unfortunately present at the same time to the patient. Rheumatoid arthritis and lupus are related syndromes.

Most of the symptoms and emotional problems associated with fibromyalgia are not psychological in origin.

It is not a condition where “everything is in your head.” In 1987, the American Medical Association recognized that fibromyalgia was a real physical illness and a major cause of disability.

Fibromyalgia can be disabling and depressing, which can interfere with the simplest daily operations.

-What you need to know about me:

Understand about fibromyalgia

1. My pain  :

It is not your suffering, it is not   my pain  . Fibromyalgia not caused by inflammation. It will not help me with your arthritis medication. I can’t work because my body doesn’t stay that way. It is not the suffering that only exists in one part of the body. Today is on my shoulder, but it could be a foot tomorrow, or maybe it’s gone. My pain is triggered by signals that incorrectly reach my brain, possibly due to sleep disorders. It is not well known, but it is real.

2. My fatigue:

I not only feel very tired. I’m so tired. I would like to be part of a physical activity, but I cannot do that. Please don’t take it personally, please. If you saw me shopping yesterday, but today I can’t help but clean the patio, it’s not because I don’t want to. I am paying the price for stressing my muscles beyond their capacity.

3. My concentration problems:

All of us with fibromyalgia call these problems “fibro-fog.” I may not remember your name, but I remember your face. You may not remember what I promised to do for you, even if you told me a few seconds ago. My problem has nothing to do with age, but it may be related to sleep disorders. I also don’t have a selective memory. I don’t even have a short-term memory for a few days.

4. My own awkwardness:

If I stop or run after the crowd, I won’t chase you. I don’t have control of my muscles to do that. If you are behind me on the stairs, be patient. These days, I am going to take my life and each step one at a time.

5. My sensitivity:

I can’t stay here! This may be due to some variables, such as bright light, very noisy or low noise, odors. Fibromyalgia has been called a “condition that makes things worse.”

6. My intolerance is as follows:

I can’t stand heat or humidity. If I’m a man, I’m going to sweat a lot. Well, I mean, if I’m a lady too. And don’t be surprised if I get out of my reach when it’s cold. I can’t tolerate the cold either. My internal thermostat is broken and nobody knows how to fix it.

7. Oh my depression:

Yes, there are days when I prefer to stay in bed, at home or die. Intense pain is unrelenting and can   cause depression  . Your true interest and understanding can lift me out of the abyss.

8. My stress:

My body cannot bear pain well. If I have to stop working, work part time or delegate the responsibilities of my home, it is not because I am lazy. The  stress  regularly can worsen my symptoms and deshabilitarme completely.

9. My weight is as follows:

You may be   overweight   or thin. It is not my choice, anyway. My body is not your body. My appetite is affected and nobody knows how to fix it.

10. My need for treatment:

Don’t envy me if I need a massage every day. My massage is not your massage. Consider what a massage can do to my body if the pain in my leg last week is what I feel all over my body. Massage can be very painful, but it is something I need. Massage can be helpful on a regular basis, at least for a time.

11. Well, my good morning:

If you see me smiling and working normally, don’t think I feel good. I am suffering from chronic pain and fatigue, which has no treatment for me. You could have a good day, a few weeks, or even a few months. Actually, it’s a good day that helps me keep going.

12. The individuality of me:

Even those with fibromyalgia are not the same. That means I can’t tell you all the signs. You may have a migraine, hip, shoulder, or knee pain, but I don’t have the same pain as anyone with that condition.
I hope that helps you understand me, but if you still have doubts about my pain, your bookstore, your library or the Internet, they have good books and articles on fibromyalgia.

Author’s Note: This letter is based on conversations with women and men around the world about fibromyalgia. You are not one of the 10 million people with fibromyalgia in the world, but it can help healthy people understand how devastating this condition can be. Please don’t take the suffering of these men lightly. You don’t want to waste a day with their shoes or their bodies. Fibromyalgia is not something we choose to have, but if we do, we must reach a point where we accept the condition as part of our lives.

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